THE VOICE

September 2024

FROM OUR CEO

Closure of two Steward hospitals may mean the loss of 70 inpatient psychiatric beds

The key to addressing the delayed movement between crisis, inpatient, and continuing care is investment in community services.

The following op-ed piece by Vinfen President & CEO Jean Yang was published on September 3, 2024, in the Opinion section of The Boston Globe.

Carney Hospital in Dorchester. SUZANNE KREITER/GLOBE STAFF

Carney Hospital in Dorchester. SUZANNE KREITER/GLOBE STAFF

Steward Health Care’s closure of Carney Hospital and Nashoba Valley Medical Center last week hurts local patients, who will have to travel longer distances for care. The closures will also negatively impact people in need of mental health services.

Steward operates 5 percent of the state’s inpatient psychiatric beds. Carney alone had 50 beds while Nashoba operated 20. While that may not sound like much, in a system already under-resourced, every bed is essential. Hospital-based services are part of a larger mental health system, a service continuum, where shortages at one service level lead to disruptions and access problems at others.

Strengthening the mental health safety net has been a focus of state leaders in recent years. In 2023, Massachusetts opened 25 Community Behavioral Health Centers across the state operated by nonprofit mental health organizations, including Vinfen. These centers offer a standard set of services including outpatient mental health, crisis intervention, and short-term crisis stabilization beds in a single location. This model has proved successful in preventing mental health cases from escalating and in diverting patients from hospital emergency departments.

Additional state investments have increased the number of inpatient psychiatric beds. Yet in July, there was a weekly average of 300 individuals experiencing a mental health crisis who were “boarding” in emergency departments across the state—meaning that individuals at one of the lowest points in their lives, desperately seeking care and safety, were stuck, waiting, often alone, in hallways or hospital rooms.

Although the number of boarders is half what it was three years ago, it is still too high. The closures of beds at Carney and Nashoba Valley hospitals takes the state in the wrong direction and will certainly make the boarding problem worse. Before the end of the legislative session, the House passed its version of a health care oversight bill that would have given the state additional powers to determine the impact of bed closures before closures were approved. This bill unfortunately died in conference committee as it could not be reconciled before the end of formal session.

Emergency departments are not the only places where boarders are waiting for services. On any given day, there are around 200 patients in acute or long-term psychiatric hospitals who are approved for discharge but unable to leave because they are waiting for an opening in the community-based service system. Although Community Behavioral Health Centers have been an important front door to the mental health system, those living with serious mental health conditions require a coordinated, comprehensive set of housing and recovery support services.

Comprehensive community services, such as Adult Community Clinical Services and Program of Assertive Community Treatment, do exist. These are 24/7 services provided by nonprofit organizations that employ multidisciplinary teams of licensed mental health clinicians, nurses, peer specialists, housing coordinators, and substance use counselors. The teams provide clinical interventions, encourage peer and family support to facilitate engagement, support functioning, and maximize symptom self-management.

Serving around 24,000 adults in Massachusetts, these programs have demonstrated that, with appropriate support, people can recover, strengthen family connections, find jobs, and pursue education, all while learning to manage their mental health conditions. They are also less likely to return to the hospital with a relapse of severe mental health symptoms. Finally, these programs are significantly less costly than psychiatric hospitalization.

The key to addressing the delayed movement between crisis, inpatient, and continuing care is investment in community services. This investment will provide the relief needed to the boarding crisis and costly inpatient discharge delays. The Commonwealth needs to direct more resources to community-based services. This is where the demand is highest, the waitlists are the longest, and where workers are paid the least — significantly less than their hospital counterparts and often 30 percent less than their state employee counterparts working in similar programs. The result is that the nonprofit organizations that provide these services experience staffing vacancies that threaten the effectiveness of the services and put staff at risk.

The Commonwealth has made important strides in recent years, and we commend Governor Maura Healey and state leaders for their efforts to keep five Steward hospitals open. Adequately financing and expanding these community-based treatment and recovery support services are the keys to alleviating the backup in hospitals and in emergency departments: Doing so will allow patients in hospitals to be safely discharged to supportive services and will allow those waiting in emergency departments to move to inpatient services. This suite of services has proven highly effective at supporting individuals in their own communities, which is a far more humane and cost-effective way of providing care for those with serious mental health conditions.

HAPPENINGS

Vinfen Runs for a Healthy Tomorrow 

Run-4-Life is more than a 200-mile relay race; for Vinfen staff, it is a way of bringing health and wellness to those we serve. On September 13 and 14, a group of dedicated Vinfen staff took on the storied Ragnar: Reach the Beach race between Bretton Woods and Hampton Beach, NH to support specialized programs that promote the health of the individuals we serve. This annual event raised nearly $20,000 for Vinfen’s Health and Wellness Fund. 

Two relay teams, The Unquittables and VinFeet—comprised of Vinfen staff, friends, and family members—spent the weekend running the race and the months leading up to it training and raising money from generous individual donors and sponsors. This year’s fantastic runners were Alexis Barrientos, Deanna Bowen, Ally Cohen, Mike Collins, Frank Kimenyi, Samuel Mlanjira, Kevin Olaughlin, Jeff Papatola, PJ Robergeau, Jennifer Solis, Stefani Stamper, and Gregg Summerhayes (Unquittables); Chris Arthur, Chad Cotter, James Green, Whitney Huynh, Keith McHugh, Dami (Oluwadamilola) Philip, Katie Reilly, Jen Ryan, Christie Sether, Anne Thelen, and Idah Zvoushe (VinFeet). 

The average life expectancy for people with mental health conditions and intellectual and developmental disabilities is significantly shorter compared to the general population. This is mainly due to treatable medical conditions that are caused by lifestyle risk factors like smoking, obesity, and inadequate access to medical care. 

Donations made to Run-4-Life go toward microgrants that fund specific initiatives designed to enhance the physical health and well-being of the individuals we serve. Examples of some of the projects funded by last year’s race that have already been implemented include: 

  • Gardening: Gardening supplies were purchased for residents to plant and grow fresh vegetables for meals. Participants utilized gardening as a form of exercise and a chance to be present in nature, while also eating healthy vegetables. 
  • Pickleball: Vinfen clients joined a weekly pickleball group, introducing them to a physical activity that allows them to play as a team, is accessible for people with mobility concerns, and can be played at different skill levels. 
  • Boxing Gym: Persons served at our ACCS Broadway 1 program proposed having a gym membership at a nearby boxing gym in Assembly Row. The project encourages participating in a group/social setting while remaining physically active. This project will help participants make health and wellness a part of their lives by allowing them access to a local exercise facility that they can attend regularly. 
  • Exercise Equipment: Another adult community clinical services program purchased exercise equipment for a recently designed activity area. Program staff created a workout room where residents can exercise, using equipment that clients requested. Staff also participated in the exercise program, helping to motivate engagement, encouraging clients to create a daily routine, become more physically fit, improve balance and stability, and promote movement.   

All of us at Vinfen are grateful to the phenomenal efforts of our Run-4-Life runners, the support staff, and all the generous donors to this very impactful event! 

LEADERSHIP LETTER

Dear Friends, 

As Director of Government Relations and External Affairs at Vinfen, I have the opportunity to lead our organization’s policy and outreach work. It is tremendously rewarding to advocate for positive changes that can make a difference for so many people at once. 

My advocacy work is deeply rooted in my experience as a clinical social worker. This unique perspective—gained from working in a residential home for children with mental health challenges, an adult domestic violence shelter, and inpatient psychiatric units—has given me a profound understanding of the impact of legislative decisions on the individuals we serve. It also provides me with a distinct advantage in ensuring that legislators comprehend the complexities of human services work.  

In my first year with Vinfen, I met many engaged advocates and individuals served. I have enjoyed building off the already great foundational work that Vinfen staff and supporters have done over the years. Look at some of the accomplishments we achieved together in the last few months: 

  • Successfully advocated alongside our trade associations (Providers’ Council, ADDP) and like-minded organizations (The Arc of Massachusetts) to secure an unprecedented $390M investment in the Chapter 257-line item of the Massachusetts FY25 budget—a testament to our effective advocacy work. 
  • Our advocacy efforts also led to the allocation of $1.5M for the upcoming Middlesex County Restoration Center in the Massachusetts FY25 budget.  
  • Attended the Providers’ Council Caring Force Rally in Boston and co-sponsored the regional rally in Peabody 
  • Met with several state legislators through participating in the Clubhouse Employer Celebration at the State House 
  • Submitted written testimony and/or met with legislative staff on more than 10 legislative and regulatory proposals 
  • Welcomed over a dozen legislators across six Vinfen program site visits, where they met with staff and individuals served 

 The current Massachusetts legislative session ended on July 31, and Connecticut’s ended in May. Advocacy is hard work that takes patience and perseverance. In talking with staff, I have heard that the top priority is a livable wage and worker protection. This will remain at the top of our list as we enter the next legislative session. As I work with our trades, coalition partners, and leaders to help shape our policy priorities for the next legislative session that begins January 2025, it will be my continuing priority to connect with Vinfen staff about translating clinical issues into policy solutions. The personal and professional successes and passion of those doing this critically important work make my job easy. 

Before I sign off, I want to take a minute to encourage everyone—including the people we serve—to vote! In 2022, the American Medical Association acknowledged that “voting is a social determinant of health.” If people with disabilities voted at the same rate as those without, there would be about two million more voters. You can vote on election day on Tuesday, November 5, or take advantage of early voting, vote by mail, accessibility options, and opportunities to register to vote.  

In solidarity, 
Sophie Hansen, 
Director of Government Relations and External Affairs 

VOTING AT VINFEN

Vinfen Gets Out the Vote this Election Season!

A common refrain heard throughout all corners of our organization is the critical importance of self-advocacy. In every Vinfen program, staff work with the people we serve to encourage them to seek out opportunities to let their voices be heard about the things that matter most to them.

One of the best tools at each American’s disposal to speak to power is the ballot box, and November 5 will be one of the most critically important Election Days in our nation’s history. Here at Vinfen, we are aware that individuals with disabilities are a demographic often underrepresented at the polls, and we’re working to find ways to encourage those we serve to educate themselves on the issues and use the power of their vote!

At our Point After Club (PAC) for individuals with mental health conditions in Lawrence, one member is dedicated to doing just that: Barbara, a PAC member for 37 years, has voted in every election since she turned 18. To her mind, it’s one of the most critical responsibilities a person has to themselves, and their community.

“When I was a child in school, I don’t feel they ever talked enough about how important it is to vote,” she says. “Who we elect as our leaders impacts so many things—housing, our schools, medical care… voting is so important!”

Barbara has done her part to educate herself and her fellow club members on the key issues facing voters this November. One of the first things you see when you walk through the doors of PAC is a large bulletin board, which Barbara has filled with photos of the presidential candidates, bios and platform information for local candidates, descriptions of this year’s Massachusetts ballot questions, relevant election dates and precinct locations. Essentially, it’s a primer for helping people get to know the issues and candidates in this year’s elections.

“Barbara does a wonderful job helping answer people’s questions and helping them get ready to participate in the elections,” says Denise McTeague, PAC’s Program Manager. “She’s made a real impact. We have a member here, Donald, who is very politically aware and frequently discusses current events, but I was shocked to learn that he’d never registered to vote. Barbara offered support, encouragement and information about how to go about it, and he is now registered and planning to vote in his first-ever election this fall.”

“The point is never about trying to steer people to vote for a certain candidate,” Barbara says. “We have lots of discussions here, and people disagree about who they support and why. The most important thing is that, whoever you happen to support, you need to get out and cast that vote.”

On Election Day, PAC staff will provide transportation to polling locations for any member who wants to cast their vote, as they have in the past. It’s part of an overall clubhouse focus on encouraging self-advocacy, which includes PAC trips to the State House to lobby legislators and engagement with statewide organizations that support individuals with disabilities. Barbara is grateful for that reinforcement that individuals can make a difference.

“Growing up, I was always belittled and told my opinions don’t count. When you’re told that you’re stupid long enough, you start to believe it,” she says. “But I’ve worked to educate myself, and I know that my opinions and my vote do count. Everybody’s does.”

With mere weeks to go until Election Day, Vinfen is making available to all our staff and those we serve a full complement of voting resources via our company’s intranet. Assembled for easy use, staff and persons served can find everything they need to prepare a voting plan for November 5, including: 

  • Help for individuals in finding their polling location via www.WhereDoIVoteMA.com 
  • A link to the state election websites in Massachusetts and Connecticut, providing key dates like Election Day, deadlines for registering to vote, and more 
  • A list of ballot questions and explanations of what they mean
  • Information about voting by mail/absentee voting 
  • Voting accessibility resources and information for individuals with disabilities 

We hope that everyone will be sure to make their voices heard on November 5!  

BRIGHTON DAY HABILITATION

At Vinfen's Brighton Day Habilitation, we empower individuals to thrive through personalized care. Our services enhance communication, motor skills, and socialization through enriching activities like art, music, and gardening, while skill-building in self-care and independent living fosters confidence for program participants. Therapeutic and nursing staff are on hand to ensure comprehensive care, and they collaborate with families to create individualized plans with measurable goals, ensuring each person’s progress. Our commitment is to support individual growth, one step at a time, helping everyone reach their full potential. 

Visit us online to learn more about Brighton Day Habilitation!  

VINFEN IN THE COMMUNITY

Vinfen CEO Joins Local Business Leaders for Legislative Talk 

Vinfen President/CEO Jean Yang joined members of The New England Council in attending a fireside chat with Congresswoman Lori Trahan at Boston’s Hampshire House on September 5. The Council's Capitol Hill Report breakfast event gathered around 130 attendees, all members of the regional business association, to engage with Congresswoman Lori Trahan in a crucial discussion on pressing legislative matters. As part of an ongoing series, this event allowed members to stay informed on issues in Congress that are likely to impact the New England region.  

The conversation between Congresswoman Trahan and Ira Golden of Lantheus, the event's sponsor, offered insights into the congressional agenda leading up to the election. Topics such as telehealth, housing, and higher education were highlighted as key focus areas, and the event underscored the collaborative spirit of the New England Council, facilitating direct dialogue between its members and influential legislators.  

PROGRAM SPOTLIGHT

Next Generation Mental Health Supports at Vinfen’s Young Adult Access Centers 

“Youthquake helped me gain myself back. Over the years, I’ve felt like my light was dimmed, but every time I walk into the building, I feel nothing but welcomed and accepted for who I am. (The program) has helped me regain the confidence within myself and has handed me the tools and the will to stay strong and keep going, no matter what life throws at me.” --YouthQuake participant 

Nothing speaks louder than a youth acquiring skills to lead a full and satisfying life. And that’s what many young people have gained by attending one of Vinfen’s Young Adult Access Centers. 

Taking care of one’s mental health is vital at any age, but for teenagers and young adults at a critical stage in their emotional development, dealing with the obstacles and stigma that can come from mental health challenges can be particularly difficult.  

Vinfen’s three Young Adult Access Centers, located in Lawrence and Everett (named YouForward) and in Lowell (named YouthQuake) are designed to help young people between the ages of 16 to 26 who are having difficulty regulating their emotions or experiencing other mental health challenges. The access centers aim to provide a resource that will help young people embark on a positive life path into adulthood and toward personal stability, secure housing, competitive employment, and positive family and social relationships. 

YouForward and YouthQuake strive to combat the stigma surrounding mental health while empowering young people to speak honestly and openly about their mental health. Whether through peer mentorship, mental health support, support groups, food pantries, or assistance in seeking community resources, the Youth and Young Adult Access Centers provide low-barrier access—meaning that young people can walk right in and receive immediate access to care, with no physician referral or mental health diagnosis required. 

Peer mentors are accessible within our centers to support, refer, and connect individuals to free training, courses, and workshops; mental health and substance use referrals and support; social activities; membership into our social marketing team; and much more. The centers also support young adults with reaching goals, including finishing high school, going to college, or even moving into their own apartments. Our services are individually tailored and strive to raise mental health awareness.  

The Access Centers aim to reach young adults who are homeless/housing insecure, LGBTQ+ identifying, members of communities who traditionally do not seek out mental health services,  have had negative experiences with providers, or have aged out of services.  

“YouthQuake has notably improved my mental health and quality of life. Connecting with people and getting out is very important to me and my mental health—both of which are provided here. I have the space to meet new people and hang out with friends.”--program participant 

“(The center) has improved my life by connecting me with resources for housing, assisting with driving lessons and job searches, and giving me a space to be myself when I can’t be in other spaces.”--program participant 

Please visit our website’s Young Adult Access Centers page to learn more about the programs. 

VINFEN VOICES

By Anna Harris

(Editor’s Note): Anna Harris is a member of Vinfen’s Point After Clubhouse in Lawrence. On May 15, she joined other individuals with mental health conditions for This Is My Brave, a live presentation of touching essays, original music, poetry, and comedy performed by individuals living with–or loving someone with–a mental health or substance use condition. The show took place at BNH Stage in Concord, New Hampshire, where Anna and her fellow performers used the power of storytelling to break down the stigma surrounding mental illness. What follows below is an excerpted version of her story from that evening. 

I never thought mental illness would affect me. I always believed having a learning disability was enough to deal with. So, when I learned I also had mental health issues, I wasn’t sure I’d ever get past it.  

As a kid, I was diagnosed with an “Asperger's-like” nonverbal learning disorder. I went to school in North Andover with the help of an IEP (Independent Education Plan) throughout grade school. My IEP helped me in my academics, but I had a hard time socializing. I was the outcast – bullied by my peers. I had a lifelong feeling of rejection from cruel classmates and absent teachers who did nothing to stop the bullying. I didn’t have the skills to cope with any of it.  

As I moved through high school, things got better. Properly skilled special education teachers, aids and staff can go a long way toward the success or failure of individual students in public school settings. My major obstacle in high school was the math portion of the state test required to graduate. My teacher Deb helped me to believe in myself and that I would pass, walk on graduation day, and get my diploma. 

I never thought the day would come, but it finally did. I graduated in June 2006 and received the first-ever Principal’s award for most improved student. I was shocked, so much so that I didn’t realize my classmates were giving me a standing ovation. I crushed it! I was thrilled and joyous to have finally defeated one mountain.  

I’d applied to Landmark College, a school in Putney, VT, for neuro-divergent students and kids with other learning differences. When the manilla envelope arrived in the mailbox, I first thought I’d been rejected, but I opened the envelope and found an acceptance for the coming fall.  

I was ecstatic.  I felt ready to take on the world and begin a new journey in college. I felt good things were ahead, and for a while, I was right. The small campus made the school seem like a cozy community—a community of my own where I’d finally make friends.  

In the Fall of 2006, I started my studies full of hope. But upon my arrival as a freshman, I still felt ostracized and alone—and by a community that should’ve made me feel welcome. I loved my classes and never skipped them, but I would end up isolating myself for the entirety of the two years. I wasn’t socializing to the best of my ability. I continued to find it hard to feel like anything other than an outcast.  

Graduation snuck up on me. Fear and the anxiety of the unknown overwhelmed me. I wasn’t myself. There was something wrong even then that I couldn’t pinpoint.  

But I did graduate with my associate’s degree in December 2008. AND I was accepted to a few colleges for my bachelor’s degree. I chose a small college in New Hampshire. I was only a year out from obtaining my bachelor’s degree, but there were obstacles in my way. I was seeing a doctor regularly for some of my physical conditions. I visited my old college, where people turned their back on me because they didn’t understand my illness. Visiting triggered PTSD.   

The end of the semester was coming up. Exams. School work. There were many small things. Everyday things people do. I didn’t know there was anything wrong, but it piled up. Became a mountain. I ended up in the hospital, struggling with psychosis.  

While I was in the hospital, I was too sick to be capable of doing anything myself. I had to recover and get better before I could actively find a unique and special community that was all my own, and before I could live on my own again. When I first got out of the hospital, I lived with my parents for 6 years, until I found The Point After Club. 

The Point After Club is a place for people who struggle with mental health issues. We socialize. We interact. We support each other with work and education goals. We go on fun activities. To the beach, Red Sox, and Fisher Cats games. I became a member of the Point After Club and the staff and other members advocated for me. And I advocated for myself. I finally found my own community of peers who wouldn’t ostracize me or make me feel alone.  

I thought I would always be living with my parents in some capacity. Not just because of my mental health, but my physical health too. But in 2020, I started living in my own independent housing. Living on my own, I feel lonely sometimes. But that’s normal. It also feels invigorating. I have my own private space.  

Because of The Point After Club, I can now support others with the same compassion they had for me. Today, I help others. I talk to people. I listen. I offer resources for support. I welcome new people and show them around the club to help them find where they fit in. I found help, and now I help others.  

Without them, I wouldn’t be who I am today. Regardless of all my sicknesses and all that happened to me, I came out strong in the end, and I have the support of friends and community behind me to make sure that I stay strong.  

I was born different. And I was born to tell my story. I’m ready to change the world and to break the stigma! There are so many people who are still afraid of what they don’t know, and there are so many people living with psychosis who live their lives just like everybody else.  

SHARE YOUR VOICE

Do you have questions about Vinfen and our services? Thoughts about any of the stories you just read? Suggestions about things you’d like to see in future newsletters? Wondering how you can help support Vinfen’s work? We want to hear from you! Feel free to drop a line to Josh Wardrop at wardropj@vinfen.org with your feedback and questions. And thank you for reading The VOICE!

Established in 1977, Vinfen is a nonprofit health and human services organization and a leading provider of community-based services to individuals with mental health conditions, intellectual and developmental disabilities, brain injuries, and behavioral health challenges. Our services and advocacy promote the recovery, resiliency, habilitation, and self-determination of the people we serve.